Our Mission

We empower you through patient and caregiver stories, experiences, and resources to help you with your own journey.

Message from our Founder

Welcome to Seeking Cure!

This portal brings together years of experience working as a healthcare provider, an informatician, a clinical researcher, and, most importantly, a caregiver.

It comes from the realization that in the face of a debilitating disease:
1) “Information is Power” in maintaining some control; and
2) “Patient Voice” is essential in all decision-making.

My father’s diagnosis with multiple myeloma changed his role from being a senior physician in the community to that of a patient and mine from a medical resident to that of a caregiver. While we continued to seek out journal articles to understand the scientific perspective, the change in roles also prompted us to consider what his options were and what he could expect as a patient on the next steps of his journey. Even with our experience in healthcare, we did not know where to go, for example, to find clinical trials or to know which drugs were most recently approved for his disease to see if he could qualify for them.

It would be years later, after he had passed and I was now working as a clinical researcher, that I would understand how to find clinical trials and experts involved in them. This left me to wonder whether he would have been eligible for a clinical trial and would that have changed anything?

The goal of this portal is to bring information together and to build a community to share our experiences.

In the next few months, we intend to add new diseases and to build new features so that we can learn from and support each other.

Thank you for taking the time to visit our portal. I hope that you will find the information here useful and will share your experiences with others.

Maya